Please take a moment to view a trailer from our film "The Ataxian", about the triumphs of a young man, Kyle Bryant living with FA.

We are dedicated to scientific research, building scientific infrastructure, and educating the public.


Friedreich's Ataxia is a debilitating, life-shortening, degenerative, neuro-muscular disorder. There are approximately 5,000 patients in the US and 15,000 globally.  It is a single gene defect disorder that prevents the production of a protein frataxin(FXN.)  Frataxin is a vital protein whose function is to help the mitochondria produce energy. It is also know that neurological cells in FA patients degenerate over time.  



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